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Monday, December 14, 2015

Speaking of Journeys....


Over the past few years, I've had the pleasure of speaking to different groups; to doctors and medical students, the general public, and for institutions and organizations. As anyone who knows me sees, I express myself openly and shamelessly via my writing and social media. It's an honor and also humbling to receive feedback. Through my outreach and via my writing, I've met people in person and virtually - from around the world who have touched my life in ways I never would've known.

Public speaking, for me,  is enjoyable because I'm so passionate about the subject matter. I'm passionate about spreading my message and about saving lives. Whether it's inspiring or informative; that's for any individual to decide. I don't TRY to inspire. I view myself as a vessel with a purpose. I'm just a tiny grain of sand on this temporary part of this journey called: life on earth.

I recently spoke to a group of women. I had an inspirational singer with me. While I won't post my friend singing publicly, I will share an edited version of my talk. I've yet to upload the full 31 minutes to YouTube.... so here's the "trailer".

We're all on a journey.


Saturday, November 7, 2015

Cultivating My Watermelon




It's been a long stretch on my journey to get back to my #Happylanche.

Tic tock- we ALL live thinking we can beat the clock. I'm the only one who can resurrect the Love + Faith = Joy and surrender to live life as long as my "house" will stand.  


It's my choice to keep running on my own path - running with the cancer while keeping my household happy, clean, and healthy as possible. 

Always remember that we take nothing with us to the Next Life except for our souls but we do leave a legacy behind.  Only I can build that. I'm on Earth  to cultivate my soul. I can grow a raisin, a peach, or a plum perhaps. I want mine to be a watermelon! I'm here for a reason. I'm here to make my soul juicy; a big fat juicy watermelon.

As I sweat my fears away for the moment... I'm still here. I can cry or smile on the same day and my house still stands strong - for now.

Nobody knows when the wolf will blow their house down so I'll keep building my bricks and unlock the door to the friendly only....

Tic tock. We're all racing the clock - run against it or with it. Only you can decide.

Sunday, July 5, 2015

TESARO pharmaceutical - Will Watch Me Die

The pharmaceutical company, TESARO  are refusing to "unblind" the Niraparib NOVA study for me even though my cancer is progressing. It's in my contract which states that they will notify my medical team whether or not I was receiving a placebo when deemed medically necessary. My doctors have been requesting it for two weeks! I have progression of Ovarian cancer. I'm posting this publicly in hope that someone "out there" can help me. The clock is ticking and my life is hanging.... If you or someone that you know can help me, please reach out to me. Thank you!

You can sign the petition by clicking this link.


This is an e mail that I sent them yet have received zero response:


To Whom It May Concern at TESARO,

Regarding: Niraparib NOVA Study Breach of Contract

I've been in the Niraparib study for 10 months and am now having a recurrence. This is my 2nd recurrence of ovarian cancer. The Niraparib Tesaro group is refusing to unblind the study and tell us what I was taking. This is an illegal breach of the contract and unethical.  The contract clearly states that if medically necessary TESARO are legally bound to  inform my doctors whether your drug company was giving me placebo or PARPs. 

Under these circumstances, I cannot get into any other drug trials or receive the FDA approved PARPs inhibitor, Olaparib, unless we have proof from Tesaro that I was on a placebo.... AND it would be a waste of my time (and life) to give me PARPs again if the Niraparib didn't work.

TESARO have proven themselves to be unreliable and unethical - grounds for litigation and possible closing down of the entire Niraparib drug trial.

I am now pursuing the option of  litigation against TESARO. Your representatives admitted (on the phone to my oncologist) that they are in breach of contract and know that TESARO will lose the case. I also plan to sue for pain and suffering. The treatment I'm receiving by TESARO is cruel and inhumane. I have documented proof of physical symptoms caused by your company's insensitivity and cruelty.

My life hangs in danger and I will take every measure necessary to insure that my legal rights are fulfilled. I will go after you with all I have and I have limitless funds to do so.

Please make sure that your company does the right thing. Your doctors needed to provide my team of oncologists with the information as promised both in writing and during many phone and e mail requests and made by my the Shaare Zedek Medical Center.

Sincerely,
Patient #1
Shaare Tzedek Medical Center, Jerusalem Israel



Thursday, July 2, 2015

Keep My Soul Hungry

Just when you think that life is going in one direction, a gust of apocalyptic wind whooshes in and changes your whole life direction. You think it's one thing yet, it's another. Cancer comes and cancer goes.... and it comes back again. Everyone has it. It comes in many forms: depression, anxiety, illness, and grief.
 
This world is flawed. Every individual is blemished and imperfect and generations of our People survived the worst of times and produced a plethora of successful leaders, artists, and thinkers. Eras that were worse than most of us can imagine gave birth to the greatest periods of development, technology, and advancement of Humankind.

Perhaps this is no epiphany to some however I am beginning to think struggles and challenges are God's gifts to our souls - so we can grow and become closer to Him. Cancer is a parasite that lives only to destroy and overtake the physical body.  Life challenges and struggles are the cancers of the soul. These bloodsucking trials enter our bodies and our souls and we conquer them - maybe for a day, a week, or for years, and make us change and grow.

Maybe I should say, Thank YOU God for loving me and caring enough to challenge my existence on this Earth, making my soul stronger, more involved and rugged. We may live in denial but our lives as mortals are so very short. We are Earthbound for a flash in time while our souls are eternal.

I'm impulsive. I get bad news and I flip out, cry, and lose many nights of sleep. I calm down with thought and some time. I can begin to grope the monstrosity and the terror and feed it to my hungry soul and I pray I can digest it into encouragement and confidence.

I pray to You, God, keep my soul hungry. Let me eat the nourishing afflictions that You send to my body and spirit. Make my eternal soul greater before You take my body away.

Keep my soul hungry. Make me grow better. I know my soul is indestructible and these tribulations will bring me closer to You. I am not the vessel that is a temporary home to my soul. I am my spirit and I am forever.

Wednesday, July 1, 2015

Love Faith And Flying High



Sail
This is how I show my love
I made it in my mind because
Blame it on my ADD baby
This is how an angel dies
Blame it on my own sick pride
Blame it on my ADD baby
Sail, sail
Sail, sail, sail
Maybe I should cry for help
Maybe I should kill myself (myself)
Blame it on my ADD baby
Maybe I'm a different breed
Maybe I'm not listening
So blame it on my ADD baby
Sail, sail
Sail, sail, sail
La la la la la la, la la la la la la
la la la la la la, la la la la la la
Sail, sail
Sail, sail
Sail, sail
Sail, sail, sail

(Sail - AWOLNATION)

 

Thursday, June 25, 2015

I Thought You Should Know - I Still Have Cancer


Pastoral right?

I still have cancer and I thought you would want to know.
I know how much you care about me and I feel your love and support from near and far.
I don't look sick. I don't act sick - mostly - but I have cancer.

There's this magnificent thing called remission. I've been blessed with two remissions and each time I had hope and faith that maybe the cancer wouldn't come back.  I think that many of us have irrational expectations of what remission is. I did. I thought being in remission meant that I was cancer-free.

Here's the truth... I was never cancer-free after my surgery in 2012. Not in 2013 when I finished chemotherapy for the first time, and not in July 2014 when I finished chemo for the second time. The cancer was always STILL there. It was quiet, resting, hiding; just small enough to evade the PET CT scans and the blood tests.

According to the dictionary, remission is defined as: a period of time during a serious illness when the patient's health improves. Nobody lied to me or gave me false hope. I have a very serious illness and I've been lucky to experience 6-10 month periods of undetectable disease.. Surgery and chemotherapy smashed the cancer to microscopic proportions.

Physically, I seem pretty awesome. I can run a 10K in under an hour. Nobody can see my cancer from the outside. I'm running with it... not from it.

I just received the final results today and the cancer is definitely active and back to being an unpredictable bastard (that's the nicest word I could think of). I've had that inner feeling that something was stirring for a couple of months, and then my cancer markers started to creep up, and then they tripled. Next came the suspicious findings on the PET CT which, were confirmed with cytology results. Today.

I STILL have cancer.

I have no idea what's going to happen next. I hope to celebrate my 40th birthday this year.

Today I'm sad. Devastated. Horrified. I'm allowed to sulk and weep... maybe for a few hours or days... I haven't decided yet.

I just wanted to let you know.

I get knocked down but I get up again.

Every single day is full of miracles and my faith is intact. Please don't tell me that I'm a fighter. Don't promise me that I'll beat this.  I'm not a warrior or a soldier. I'm a lover and a lifer. I'm not a killer and I'm not on a warpath.

I don't know yet. I wish I had answers. I just don't know.

I have to keep at least one step ahead of the cancer for as long as possible.... keep on keeping on.

My favorite quote of the moment is from Albert Einstein who said: There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle.

Here's to many more miracles.....

Sunday, January 11, 2015

Still Writing


It's been quite a while since my last original post for Mama Bla Blah. A few months back, I joined a new blog called, Hevria. I have been writing new posts every second Wednesday for Hevria and sometimes linking to my posts here.

With 2014 a mere 2 weeks behind us, and 2015 just beginning to unfurl it's soft and hopeful petals, I am eager and enthusiastic. I reap strength from staring down the many cancers that we continue to live with whether it be the beast we call, terrorism, the loud evil voices of racism, or the sharp destructive blades of baseless hatred, we must search for the light at the end of the tunnel. That light is eternal and we must focus, stretch out our arms, and reach for it.

I'm hopeful.


As long as I live and breathe, I will remind myself of the four most important things I can do to bring light to our earth:
1. Keep my heart brimming with love.
2. Have faith in myself and in God.
3. Maintain hope for the present and the future.
4. Continue living life to the fullest.

Something I struggle with sometimes is self worth. What is my contribution right now to my family, my community, my country, and my world? I've always had a plan. There was always a reason, many reasons, to be where I was and to do what I was doing. Then I got sick. Cancer can be a full time occupation and rightly so, but now I'm sooooooo over it. I'm not done with cancer, I know. I don't ever want cancer to be an excuse. Cancer is not my scapegoat, however cancer got in the way of My Plan. I almost reached the stage of My Plan where I would magically return to my profession as a physical therapist or another branch of my profession; helping people. Healing people. I know what people like to say about plans; man plans, God laughs. God is not laughing at us - He is laughing with us.

When plans get messed up, we need to write a new plan. 

I'm still writing.


I don't know where this new plan is going to lead. I'm hopeful and I'm also realistic and very aware. I'm living like a pro - like a professional lifer. I'm so hopeful that I'll continue to regain strength and hold onto remission. Recurrent, metastatic, stage 4 cancer stabbed me in my remission's back just a little over a year ago. My remission world came crashing down. I literally stared death in it's shadowy intimidating face. I think back to one year ago and I can't even believe that I made it through that period of time! I want to celebrate being where I am today. What a miracle! What a blessing!

Now what?


My last chemotherapy treatment was on July 3, 2014. That was the treatment that pushed my physical body over the edge. We had planned for 6 rounds but my body caved at four. Four is my magic number.

1. Love
2. Faith
3. Hope
4. Live

Less than 4 weeks later, I was hospitalized with neutropenic fever and platelet counts so low I was in immediate danger of bleeding to death. The war raged on and missiles landed all around us from Gaza. I was in the middle of my own personal war, a week in the hospital, praying and hoping to get my blood counts stable enough to secure me a place in a possibly life saving clinical trial.

 

It's six months later and here I am. 

Where am I?


I've been in the clinical trial for almost a half year already and while I have absolutely no way of knowing whether I'm getting PARPs or powdered sugar, I'm alive and mostly well. I'm trying to accomplish my current plan of living a life full of love, faith, and hope. I'm also trying to do more for my family, my community, my country, and my world. It's what I can handle right now.

I enjoy volunteering for Chibuk Rishon (First Hug), an organization that aims to provide hospitalized abandoned babies with the emotional needs that are so crucial to their healthy physical and emotional development, and recovery. As a volunteer, I visit babies and try to fill the void created by the absence of parents by giving the babies human touch, hugs and cuddles, warmth, and the love they need and want so much. We also care for lonely babies, who do not receive sufficient parental attention for various reasons. We hug babies from all communities of Israel, Jewish, Christian, Muslim; every baby deserves love and care and we are happy and honored to provide it.  Chibuk Rishon makes sure that each baby is cared for by a small group of volunteers that accompany the baby throughout their hospitalization period to make sure that each precious baby is not exposed to too many people. It's extremely humbling and heartwarming work. I'm so grateful to be involved with First Hug and highly recommend joining us or making a donation to the organization.


Another source of meaning to me, is being able to participate in raising money for an organization that I'm proud of, Life's Door-Tishkofet. Two years ago, after completing my first line of chemotherapy, I ran as team captain in the Jerusalem Marathon 10K to raise money for Tishkofet. The following year I returned as team captain but was uable to run due to feeling too weak and ill during second line chemotherapy. I'm not physically running the Jerusalem Marathon, however I'm proud to be reclaiming my role as team captain. By raising money for the organization, I feel myself running towards a better life for people with a life threatening illness. The primary goal of Life's Door-Tishkofet is to transform the experience of facing life-threatening illness from one of anguish, confusion and denial to one that encourages collaboration, growth and hope in the lives of patients, families and professionals. I hope my friends and supporters will consider making a donation, big or small, to this wonderful organization that I hold so dear.

I leave you with my latest post on Hevria, which sums up my resolutions for the years to come.

http://hevria.com/ahavaemunah/cancer-best-way-live/




Wednesday, December 24, 2014

Via Hevria M&Mspiration



http://hevria.com/ahavaemunah/mmspiration/
From birth until the age of 12, I was raised as an assimilated American Jew. I only learned of Israel’s existence when I started Jewish Day School in the 8th grade. We had the unlit house at Christmas time and my brothers and I were the only kids without Easter baskets; how I longed for those jellybean filled eggs and marshmallow Peeps! At public school, I was the nominal Jew, the one in a sea of White Christians, a handful of Native Americans, El Salvadorians, Mexicans, and two Black kids. My family seemed to stand out in the small towns and Reservations we lived on. Read more....

Sunday, November 9, 2014

Good-bye Forever Denial


It cannot possibly be okay or right or acceptable to have to say good-bye forever.

Rosh HaShanna and Yom Kippur thrust me into thinking about morbidity and of course reflect on the unknowns of the future and my life. I'm miraculously in remission for the second time. MIRACLES. So why do I think about death? Why would I need to worry about that right now? Today, everything is fine, praise G-d. Yet, the decorations I never got around to taking down from the Sukkah are fading and winter is nearing and I'm wary of jumping too far forward and pushing the hope out of balance with a bit of unexpected bad news.

As Humans, we are born with the ability to deny. Our denial allows us to live and breathe and function as forever-creatures in a very temporary world. My first brush with mortality was at age three. My parents instilled a great love and respect of animal life in me from birth. We always had pets; cats, dogs, hamsters, gerbils, and even goats, sheep and other farm animals. I was entrusted with their care. I was reliable. At age three, I was gentle and took painstaking care of my pet gerbil until one fateful day. I was playing "house" and I was the mommy. It was bedtime for my baby (the gerbil). As a doting mother, I read my "baby" a bedtime story, Marvin K. Mooney Will You Please Go Now, to be exact, and tucked baby gerbil into bed. Unfortunately for the gerbil, bed was between the pages of the Dr. Seuss classic; a bunk bed. I took the top bunk, which obviously didn't provide a happy ending for "baby". When nap time was over, I experienced death for the first time as I peeled my poor (flattened) pet gerbil from the pages of, Marvin K. Mooney Will You Please Go Now. "It's NOT moving! My baby won't wake up!" I wailed and wailed. I've heard this story repeated so many times. It's a favorite in my family, a legend. That was the day I learned about death and saying goodbye forever. When I was 8, we left our Golden Retriever, Ruby, overnight in the care of our eccentric next-door-neighbors who buried her less than 12 hours before we returned, when she died suddenly while in their care. I've since had to say goodbye to countless pets because, for some reason, cats and dogs were given a fraction of the lifespan we, humans, were blessed with.

From birth, we know that the worst thing that could happen, in the whole wide world, is death. If someone died, that was the very worst thing. When I lost my Grandma Frances, that was the first time I felt the true searing pain of losing a loved one. When Grandma Frances died, I met death. I was very fearful of it. After that, I started sneaking into my twin baby brothers' room at night to place my hand lightly on their chests and make sure they were still breathing. If my dad was late coming home from work, I feared a car crash had taken him away forever. I didn't want my parents to get older. I considered myself lucky to have young parents and I never wanted to think about the worst thing in the world. At some point, my nightly fears and insomnia were again replaced with the delicious denial that allowed me to forget that my parents and all the people that I love would not live forever. Instead, every night I said prayers. I had a ritual in which I would list each member of my family and ask G-d to bless and protect them from danger, sickness, or death and I begged for long lives for each and every loved one. We are born with the gift of denial because how is it possible to survive the pain and anxiety that would accompany the truth of human fragility?

I made it through my army service in the Givati Brigades of the IDF and experienced Human fragility again and again; over the Lebanese border and on the southern front too. After a bus bombing, in Kfar HaDarom, we lost 7 of our own on one day and it was impossible to attend all of the funerals because there were too many. I came in contact and more comfortable with impending death during my university studies. For two years, I dissected human cadavers in my Human Anatomy course. I cared for hospitalized patients and experienced losses. We talk about "getting that call in the middle of the night" and we fear that "knock at the door" and then one day I got a call. It was my mom calling and my dad was very sick. But… he had just run a marathon! But… he was barely 50! But… my dad "suddenly" had stage four colon cancer and was dying. That magical denial gets broken and you run out of tools pretty much on the spot when you get that call. That's when faith is priceless. When doctors gave my dad little hope for survival, we had to cling to miracles and praise the L-rd we received them. My dad beat the odds and the statistics and is thankfully healthy and cancer free almost 10 years later.

Then it was my turn. Stage 3 ovarian cancer at age 36. Recurrence and stage 4 less than a year later. There's no more denial. I have looked death straight in the face and I'm no longer afraid. I fear not death. Not at all. The tears of my young children put a chill in my bones and curdles my blood. "Mommy, PLEASE, don't ever leave us! Mommy, don't ever die!" My own daughter sobbed, just the other night. It was the first time that those words came out and it opened the flood gates. The magic denial, that lets children sleep at night, no longer dwells in the Lange house. My children have seen their mother go bald from chemotherapy and when the cancer went away, we celebrated and rejoiced. And the cancer came back. You can't fix the denial magic once it's broken into so many pieces, it's gone forever. The only thing we can do is acknowledge it and make it okay.

I've said good-bye to many friends. Friends who are my age and younger. As my circle of grief grows wider, it also makes me wiser. I'm crying for my friend who was snatched away by the gnarled claws of ovarian cancer, leaving a bereaved husband and four young children. I'm celebrating that she's no longer suffering and yet I want to put my fist through a wall and smash everything in sight. I want to scream... but what good will that do? She is gone forever. Good-bye forever.  I will pray for her family. I hope her husband finds new love someday... when his heart heals, when he is ready.

What does a mother say to her crying frightened children? I don't know what mothers say but I can tell you what I always try to do: tell the truth and speak from my heart. When God chose to make me your mother, He knew exactly what He was doing. God chooses the best possible parents for every child that He creates. My job, as a mother, is to love, nurture, teach, protect and discipline my children from pregnancy and birth and as long as is appropriate. I will always work towards that goal of preparing each of my children to survive and thrive, happily and fully, in the world. I hope to impart love and kindness, strength and courage, morals and goodness, and faith and more faith. I tell my children that I'm doing the very best job that I can to prepare them so that when they're ready to be grown-ups, they will have all the tools and all the skills to make their own decisions and build the lives that they desire. "But Mommy, if you're not here.... how can we go on?" and I have a response to that as well. I tell them, I'm here now. I'm in no danger of leaving you today or anytime soon but when that time comes (May it be in 100 years!) you will go on and you will make your life as happy and rich as you can. God willing, I will do my job well, and you will be ready and prepared to build your life exactly how you decide and I will be so proud that you are able to make your own choices. I will be happy, wherever I am, to know that each of my children is happy in the lives that they choose. There's a calm in our space when I say those words and I take the opportunity to insert an example. Some of the most accomplished and unique people had to go through terrible tests in their lives. A stark example, in our time, is the aftermath of the Holocaust. Thousands of survivors endured pain and suffering that is beyond the scope of imagination. Many of the survivors of the Shoa left Europe with little more than their skin and bones, yet they retained their dignity and most of all, their integrity and ability to not only survive but to thrive! They found love and meaning. They built families, homes, and communities. Not without pain and regret. They never forgot the loved souls that they lost. They glorified their memories by excelling and finding joy, love, and success.

I don't want to die.
I don't want to leave my babies behind.
I don't want to make people sad.

People die and the world keeps on spinning. It's the right thing to do. Bereaved spouses remarry. Children can and should feel free to connect with a new parent. I would want these things for my husband and my children. It's not okay to have to say goodbye forever but I know that it will be okay. I can make it okay. It HAS to be okay! It's not right or acceptable until it happens. If it happens, it needs to be okay.

Tuesday, October 28, 2014

Maybe You'll Be Old Someday


Almost everyday, I see or hear the words:
I'm so old!
I don't want to be old!
Oh no, 30 (or 40 or 50....) that's so old!
Blah blah... such 'n such... OMG we are getting SO old!

Really? Old? Is that a bad thing because I'm praying for my next birthday and the next.... I don't know if I'll see 40 but I'm sure excited about the opportunity and the same goes for 50 and 60 and 70....

I know it's just an affectation. What is "old" anyway? A number? Not a single person, on earth, has met a creature or a being that is immune to aging. There's no insurance policy, clause, or contract that will prevent the inevitable.

You are guaranteed of only one thing: one day you will die.
If you're very lucky, you will get old.


Sunday, October 12, 2014

New Year - New Adventure

Happy New Year!
As many of you know, there's a new Blog in the Blogosphere called, Hevria. We launched right before the beginning of the new Jewish Year and I currently have 3 essays published there. We are an eclectic group of writers from both the USA and Israel. Hevria is a combination of the words "Hevreh" and "Bria" in Hebrew, which mean "group of friends" and "creation".

We are a group devoted to spreading the idea of positive creation in a spiritual context. We want to make this world beautiful. And we want you to join us.


Read the article on Hevria

Read the article on Hevria

Tuesday, September 16, 2014

Pillow On My Head

I'm a firstborn and amongst other things, I am a very light sleeper. Every sound, movement, or sliver of light stand to endanger my sleep. It's not a frivolous worry. I'm easily roused, in the dark of the night, by a neighborhood dog barking, a car honking, or a water tap dripping. It's a curse that can only be broken with earplugs... or a pillow.

During the war, I stopped wearing earplugs. I needed to be alert in the event of a missile attack. The only warning was the sound of the air raid sirens and I needed to have all my senses available. We were awoken in the night a few times. It was during the war that I started covering my head with a pillow. Most nights,  I cover my whole head and leave only a tiny space open, for air. It would be a scary sight to happen upon, I admit, however it's the only way I can sleep. Now that the war is over, it's conceivably time to break out the earplugs once again.

During chemotherapy treatment, I rarely had trouble sleeping, in fact, it was difficult staying awake. One time, I went to bed on a Friday and only woke up on Sunday! Anxiety enjoys the cover of darkness and especially relishes the silence that a soft pillow provides. Sleep disruption is a disorder that plagues the healthiest of people and is probably the cause of most of the grouchiness on the planet. We all have reasons for worry, anxiety, and some sleepless nights here and there.  Humans are the only members of the animal kingdom that experience insomnia. It's a Human condition. I say this with the complete conviction of someone who has always shared my life with cats and dogs and other mammals. They never stay awake longer than a few hours. How do animals drift away anytime, anywhere? We have a lot to learn from them.

Every morning, I jump out of bed and when I'm especially tired, I promise myself that I will be back again, in bed, as soon as I drop each child off safely at school and kindergarten... but of course I never do. Daytime is for accomplishment. I fear what I would miss. And so, another day of tasks and chores, dates and appointments ensues. Let the countdown begin... my pillow awaits. Only 12 hours or more to go.

Wednesday, September 10, 2014

Swinging From The Wonderland Chandelier

“My dear, here we must run as fast as we can, just to stay in place. And if you wish to go anywhere you must run twice as fast as that.”  ― Lewis Carroll, Alice's Adventures in Wonderland

Adrenalin is surging, the wind is drying my sweat, and my feet are a blur as they tap the blacktop of the road I'm blazing down. Aware of the drone camera, to the right, swinging my arms, picking up speed, whistle, whistle, beat, beat, smile at the camera on my left. Running like the wind. 1-2-3, 1-2-3 blink. 1-2-3, 1-2-3 blink. Whatever the song is, it's making me run faster. CUT! That's a wrap! I'm starring in my own music video - in my head.  Come on, you do this too, right? This is normal. Normal cool.

I must have mistakenly fallen down the Rabbit Hole and landed in Wonderland... Wait for me!  I'm back now. Babies that were just born are tumbling toddlers now. Why are all the pre-schoolers starting first grade? So many of the women are expecting their 4th, 5th or 6th child. When did I miss this joyful news? There are new faces. Old faces are missing. When did they move away? New families moved in. Israel has a new president. The war is over. I have a new name.  Don't you remember me? Alice? Alice? Who the &%$! is Alice???? No, it's, Ahava Emunah...... It's over, the Chemotherapy Saga Part II is done. I didn't have the time or space to dwell or ponder. I just had to suck it up and take it; head on. No questions. Taking a moment to pause for too long and my entire being would freeze, crumble, and blow away like powder. Chemo is over! Get over it! I just want to be normal. My normal.

"I can't go back to yesterday because I was a different person then."

“I'm afraid I can't explain myself, sir. Because I am not myself, you see?” 

People, all around me, are nodding their heads; up down, up down. I get so many warm hugs. There's so much love in every greeting! Yes, yes, so how's life? Kids back in school? Yes, yes, move along. Life is good. STOP that White Rabbit....?! Nobody knows what you're talking about, Alice.

“How puzzling all these changes are! I'm never sure what I'm going to be, from one minute to another.”

But... I just want to be  n o r m a l.

Silence.

Pause.

Yesterday, I dropped my youngest daughter off at her kindergarten and the teacher's assistant asked me why I didn't attend the asifat horim (parent meeting) last night? What parent meeting? She then handed me a form to fill out but I couldn't remember my daughter's birth date. I remembered the month, January, but for the life of me, I couldn't come up with the day or the year. The assistant watched me struggle to remember my own child's birth date. Surely I seemed like a mad woman to this lady who just met me.  Whoooooo arrrrrre youuuuuuuu? I'm Alice. I'm NOT mad. I'm just a bit lost.
“But I don’t want to go among mad people," Alice remarked.
"Oh, you can’t help that," said the Cat: "we’re all mad here. I’m mad. You’re mad."
"How do you know I’m mad?" said Alice.
"You must be," said the Cat, "or you wouldn’t have come here.”
 Finally, I decided to share that I just completed chemotherapy treatments and my mind fogs up sometimes. Ohhhhhhhhh. Relief spread across the assistant's face and she patted my back, "Refuah shleimah," she blessed me with a full recovery, "May you be blessed with good health". Thank you. Amen. I walked out and slapped myself on the forehead. Shivers, I feel like an imbecile.

“Would you tell me, please, which way I ought to go from here?"
"That depends a good deal on where you want to get to."
"I don't much care where –"
"Then it doesn't matter which way you go.” 

Outside, in the heat, in the sun and the air, that's where I'm most alive. Heart pounding, sweat rolling, and feet moving equals life! If I can move and breathe, I'm normal. I'm fine. With my music pumped up and the breeze on my face, suddenly Alice is back in Wonderland, breaking a world record. The cameras are rolling and the world is watching me on Mtv.... no, YouTube! Smile for the cameras! Thumbs up! My thick, naturally pink hair is blown back. I'm 5'10. I'm the first human to be given a lifetime warranty; Certified Cured of Cancer. I'm 36 again because the clocks got turned back. I'm starring in my life music video and everything is perfect, I mean, normal.

“Alice came to a fork in the road. 'Which road do I take?' she asked.
'Where do you want to go?' responded the Cheshire Cat.
'I don't know,' Alice answered.
'Then,' said the Cat, 'it doesn't matter.” 

What song is my music video? It might be, Happy by Pharrell Williams, or Call Me Maybe by Carly Rae Jepsen because those are my power songs that make my feet fly when I'm out there. Being honest with myself, Chandelier by Sia, minus the 1-2-3 drink, better describes my current mania.

          Party girls don't get hurt
Can't feel anything, when will I learn?
I push it down, push it down


I'm the one "for a good time call"
Phone's blowin' up, ringin' my doorbell
I feel the love, feel the love


1, 2, 3, 1, 2, 3, drink
1, 2, 3, 1, 2, 3, drink
1, 2, 3, 1, 2, 3, drink


Throw 'em back 'til I lose count

I'm gonna swing from the chandelier, from the chandelier
I'm gonna live like tomorrow doesn't exist
Like it doesn't exist
I'm gonna fly like a bird through the night, feel my tears as they dry
I'm gonna swing from the chandelier, from the chandelier


But I'm holding on for dear life, won't look down, won't open my eyes
Keep my glass full until morning light, 'cause I'm just holding on for tonight
Help me, I'm holding on for dear life, won't look down, won't open my eyes
Keep my glass full until morning light, 'cause I'm just holding on for tonight
On for tonight


Sun is up, I'm a mess
Gotta get out now, gotta run from this
Here comes the shame, here comes the shame


1, 2, 3, 1, 2, 3, drink
1, 2, 3, 1, 2, 3, drink
1, 2, 3, 1, 2, 3, drink


Throw 'em back 'til I lose count

I'm gonna swing from the chandelier, from the chandelier
I'm gonna live like tomorrow doesn't exist
Like it doesn't exist
I'm gonna fly like a bird through the night, feel my tears as they dry
I'm gonna swing from the chandelier, from the chandelier


But I'm holding on for dear life, won't look down, won't open my eyes
Keep my glass full until morning light, 'cause I'm just holding on for tonight
Help me, I'm holding on for dear life, won't look down, won't open my eyes
Keep my glass full until morning light, 'cause I'm just holding on for tonight
On for tonight


On for tonight
'Cause I'm just holding on for tonight
Oh, I'm just holding on for tonight
On for tonight
On for tonight
'Cause I'm just holding on for tonight
'Cause I'm just holding on for tonight
Oh, I'm just holding on for tonight
On for tonight
On for tonight

In my "reality", I'm swinging from a chandelier. I'm a (happy) mess and I'm holding on for dear life. I've got to run from this. I'm living like tomorrow doesn't exist. Holding on. Holding on. Holding on.
This is my normal.

“Who in the world am I? Ah, that's the great puzzle.”
― Lewis Carroll, Alice in Wonderland

Wednesday, August 20, 2014

Crossroads. Again.


It's really difficult to write an update about myself in the middle of a war. It feels self centered or selfish or just wrong. The war raged on. There was a ceasefire. Now, it's apparent that the ceasefire ended with missiles and rockets being launched in every direction, including a few at my neighborhood last night.

There are few things more despicable than cancer. One of them is terrorism. Living under constant threat of death and destruction and at the complete mercy of God and the Israeli Army and the Iron Dome is very stressful. It's not completely different from my own personal cancer journey. My friends, in Israel, will understand me when I describe that moment when the air raid siren goes off. Is that the air raid siren?! Everybody freezes in their tracks. Within seconds, adrenalin surges through your veins. You grab your children and you move as quickly as you safely can to that bomb shelter. You don't think! You just move! Once you're safely in the bomb shelter, you might have a moment to let out a sigh of relief, a nervous smile to reassure the kids, yourself, the dog. For me, my heart pounding uncontrollably, is the next experience, sometimes accompanied by shaking.  The siren ends and then we wait. Sometimes we hear and feel explosions. My body shakes. My heart pounds. After a few minutes, it's safe to leave the bomb shelter. When will the next air raid siren ring? We just don't know. That complete randomness, absolute uncertainty... well not so absolute. We kind of have a feeling that there will be more missiles aimed at us but we just don't know when.

I made it this far. Again.

I'm in remission. The tumors have shrunk or are undetectable. It's a miracle that the chemotherapy worked quickly and efficiently. I'm very very lucky. I have been at this crossroads before and nobody thought that the cancer would come back so quickly. I've reached the boundaries of medical intervention. Just in time for me to enjoy the good news, there were also plenty of snags along the way. A possible brain bleed that ended up being nothing more than an apparent stroke that left a little hole in my brain. A hospital stay, in isolation, when my blood levels completely crashed as a direct result of toxicity from the chemotherapy. A glowing, on the PET CT, in my stomach, that required invasive tests with inconclusive results. An ache here and a pain there that I'm reluctant to pay attention to. Okay, SHH! Enough! I arrived at this crossroads with plenty of reminders that it can and will be pulled out from under me at any moment - without notice. The powers of Oncology can promise me that we have done everything possible to give me the best chance possible. I'm cautious and I'm optimistic. The only option, right now, is to live. Live life like there's no tomorrow because who knows what will happen next?

New drugs are being developed, PARP inhibitors. Around the time of my original diagnosis, in 2012, advanced studies were just taking off. Now, a phase 3 drug trial with a powerful PARP inhibitor is well underway and I'm a participant. Only time will tell how lucky a participant I am as 2/3 of the women receive the active drug and 1/3 of the participants receive a placebo; sugar pills.

Am I cured? No. There's no cure. Treatment may cure some women with ovarian cancer that is advanced when it is first diagnosed. For most women with advanced ovarian cancer, or cancer that has come back after treatment, it is not possible to cure it. I'm a positive and optimistic person who needs to live in reality and be prepared for whatever life may bring so I'm very comfortable sharing this information.

We are at war. Nobody knows when the terrorists will strike but we won't give up! We don't stop living. The stress and anxiety might make us want to sit in the bomb shelter but that's not much of a life, is it? The terrorists will never win. Neither will cancer. It's a done deal. There might not be a cure but there's always a crossroads and there's always a choice.

Here I am again, Crossroads, you missed me and I'm back.

Tuesday, August 5, 2014

Pray for Peace - Prepare for War

Life in Israel isn't peaceful and carefree. The mood, on the street, is worry and sadness. While we are strong and have faith in our strength, the constant threat of rocket fire, air raid sirens going off at any moment, and the loss of precious human life is in the air. Today is the 9th of Av. This very date, on the Hebrew calender, Tisha b'Av, marks a list of catastrophes so horrific, for the Jewish People, it's clearly a day that is cursed by God.

It all began when the Jewish People were wandering in the desert. We had just left Egypt and experienced the miracles of the Exodus. We were just about to enter the Holy Land, Israel, however on the 9th of Av, we cried that we wanted to go back to being slaves in Egypt because our own spies reported that Israel was uninhabitable. That was back in 1313 BCE. Both the First and Second Temples were destroyed on the same day, the 9th of Av, in 587 BCE and in 70 CE. The Roman massacre of over 100,000 Jews at Betar also occured on the 9th of Av back in 132 CE. The Jewish People were expelled from England on the 9th of Av, 1290 CE, from France in 1306, and from Spain in 1492. The three weeks leading up to 9 B'Av are weeks of mourning and we also commemorate the loss of 6 million Jewish People who were murdered by the Nazis during World War II which, came to be after The Final Solution was approved, during the mourning period of Av, in 1941.

Today, is a National Jewish day of mourning and fasting and prayer.

Today, the People of Israel, the Jewish People, are experiencing a modern day awakening of what our ancestors in the desert, our ancestors in England, France, and Spain, and let's face it, all of Europe, most certainly realized. The world is not a welcoming place for a Jew. What is the difference today? The Jewish State of Israel and the IDF. What's the same? Everything else and God.

I know that there is one place, on the entire earth, where I belong, in a total area of 8,630 square miles, 290 miles in length and about 85 miles across at the widest point. Surrounded  by Lebanon to the north, Syria to the northeast, Jordan to the east, Egypt to the southwest and the Mediterranean Sea to the west, my only home, so small it could comfortably rest inside of Lake Michigan and is often compared to the state of New Jersey. I'm not here to discuss politics and I leave the judgments up to God. I embrace my smallness, as a grain of sand, on God's vast and wonderful beach. I know of good and I know of evil. I know of love and faith and happiness and.... I know of pain and suffering and sadness. I know of war and I know of peace. I know where I'm wanted and where I'm not. I pray for peace yet I'm prepared for war.


Tuesday, July 15, 2014

Hopefully it's Nothing....

Iron Dome takes out missile mid-air
In the past couple of weeks, I've been hoping for nothing. To some, that might ring pessimistic.  As missiles rain down on my country, air raids sounding off in every city of Israel, each of us prays and hopes that our home won't be hit. And if my house is hit, God forbid, hopefully it's nothing.... Hopefully we'll be in the bomb shelter and only the house will be destroyed. When the Iron Dome takes down a Gazan missile over Tel Aviv, hopefully it's nothing.... hopefully no one will be hit with shrapnel and injured, or worse.

On Thursday, July 3rd, I had my last chemotherapy treatment. Five days later, I began to feel very unwell and I spiked a fever. I called my doctor... hopefully it's nothing, but I had to go to the emergency room. My head began to pound with an excruciating headache and blood work showed my platelet counts were falling at a drastic rate. I needed a head CT scan, to check for a brain bleed, my second one since June 19th, when I had similar symptoms. Of course, once again, hopefully it's nothing.... and it was, no bleed! Thankfully!

I spent 5 nights in an isolation room, on the oncology ward, at Shaare Zedek Medical Center... hoping for nothing. Really, I was hoping my platelet count would go up along with my white blood cells, and hemoglobin, and electrolytes. I was praying to NOT need a blood transfusion.  I received a platelet transfusion, some Neupogen shots, IV antibiotics, and lots of electrolyte infusions. I became well enough and I went home. Something really bothered me about my release letter because in the summary, at the bottom on the page, it said something about a little lesion, in my brain. Apparently the little lesion, in my brain, was confirmed on the June 19 CT as well. Hopefully it's nothing. It wasn't there in May or March so obviously I'm worried.

How does one stop worrying at every single bump and twist along their journey? The first time the air raid sirens blasted in my city and we ran for the bomb shelter, I freaked out. It was unexpected. My heart pounded in my chest as I escorted my beloved young children, one by one, down to the bomb shelter. My breath was heavy, and I was scared. The second time, I was in the hospital, and all I could think of were my children, at home... were they okay? Would their babysitter get them to the bomb shelter safely? By the third air raid siren, I took my time to find my beret and put on my shoes before walking calmly to the protected space. My heart didn't race and I merely hoped it was nothing, I prayed no one would get hurt, that people would make it into the bomb shelters safely. Shortly after arriving home, from the hospital, the air raid sirens rang, and my whole family calmly walk downstairs, into our bomb shelter, I tried to make up a silly song about marching into the shelter. The kids bounced down the stairs. We took some smiley photos. We waited to feel the vibrations of the explosions, we listened for the "booms". I am not scared as long as I have my entire family around me, safely in the shelter. How does living through a war become so routine? It does, because we adapt. We have faith.

As the Iron Dome continues to take down hundreds of missiles coming our way, from Gaza, I look to the sky and imagine God's Great Hands shielding us from the blasts and the shrapnel. Every time, it's a miracle that so few people are physically injured. We are living through an unimaginable situation of rockets and missiles repeatedly falling from the sky, and we've managed to continue living around it. Okay, so we won't go to the beach because that would be crazy.... no bomb shelters at the beach! So we'll stay home and create an art project or bake or read a book. Thankfully, the army, the airforce, and of course, God, is taking care of us.

So, later I will have an MRI of my brain. I can only imagine what could cause the appearance of a lesion, in my brain, on the CT, twice. Hopefully it's nothing... but if it's something... surely I'll find a way to deal with that bomb too.

Thursday, July 3, 2014

When Is Enough... Enough?

How do we know when we have truly done enough? Tried enough? Studied enough? Spent enough time.... enough attention? Prayed enough? Given enough? Thanked enough? Cared enough?

Coming to the end of a very difficult week, in Israel, it's very hard to separate the emotions in my personal life from the feelings we're experiencing as a Nation. The soil is beginning to settle atop three freshly covered graves of 3 teenaged boys. As I type away, from the safety of my air-conditioned quiet home, my phone blasts Color Red alarms as missiles, from Gaza, rain down on the South of Israel. While three families and an entire country are in mourning, for the murders of three teens, there are so many questions and not enough answers. I admit, my own personal struggles with cancer and chemotherapy, as trying as they are, feel less important and urgent.

When is enough enough? There's a very thin line between not doing enough and doing too much... doing harm. The lines are covered. We can't see them. Is it possible to hope enough or hope too much? So many people are waking up to that reality right now, in front of my eyes. For some, the pain is too much. The anger is too much. For others, the pain is not enough. The love is not enough. It's hard sometimes to not judge. It's very difficult to be silent. With the internet, Facebook, Twitter, and instant media... it feels like enough is enough. It's all too much!

Last week, I reached my breaking point. I had had enough! My physical level of suffering, from the effects of chemotherapy, had reached the point of enough and I knew it was the end. I only told one person, my beloved husband, David. That same day, I received a call from my oncologist. He informed me that enough was enough. My body has reached its limit. The balance between killing cancer and killing me is blurry. In order to avoid causing permanent damage to my bone marrow and possibly killing me, the time has come to take a break from chemotherapy.  The tumors shrunk. Some of them are no longer visible. The chemo did a lot of good and now, maybe it's enough.

When the cancer came back, it reappeared in unusual places, deep inside my liver, next to my heart and vital arteries, and peppered throughout my abdomen. Stage 4. The cancer was fast and aggressive and progressed quickly. Thankfully, it also responded to chemotherapy quickly. We have no way of knowing if this was enough chemo. It's very unlikely that all of the cancer cells are dead. It's very unlikely that this is end of my cancer journey and therefore it's time to find another treatment that will hopefully keep me in clinical remission for as long as possible. It's time to try promising yet experimental treatment. Clinical drug trials offer treatments that haven't yet been approved and are therefore unavailable on the open market. The only way to receive treatment is to become part of a scientific study which also comes with the risk of NOT receiving any treatment at all - placebo which are made of sugar or some other harmless, inactive component.

Today, I received chemotherapy treatment; hopefully my last. Hopefully it was enough. It's time to rebuild my inner physical strength and recover from the physical effects of the chemicals that helped to save my life. As I try to internalize and heal the pain and horror all around us, here, in the Holyland, I draw a line directly to the heart of my own personal struggles. When is enough enough? If there's ONE thing I've learned on my journey... it's to love and have faith and there's never too much of those. Love and faith. Love and faith. Enough pain. Enough violence. Enough war. Enough anger, hatred, and mistakes....! We always have enough of those.


Sunday, June 22, 2014

I Am A Grain Of Sand

I am just a grain of sand,
Insignificant, plain, resting in His hand.
Rough and tiny, salty and meek,
My life, a blessing. My faith, never weak.

Life can flow, as sand, through a sieve.
Try to stop time, there is no reprieve.
I too fell through His giant fingers,
Painful landing, my immense faith still lingers

People ask day in and out, the same question,
Why you? Why me? What's the suggestion?
I have the answer. It's simple and right.
God is good - Love and Faith day and night.

I feel so blessed to know that there are amazing people, around me and out there, who are inspired by my journey. I'm just a grain of sand on God's endless shore. I'm just one of the billions of people here. I'm moved to tears..... I'm humbled and completely shaken to my core when I receive messages of encouragement from people I've never met or seen.

The other day, I was once again back, at Shaare Zedek Medical Center. It was Chemo Day - again. Again, something deep inside me said I wasn't going to be able to receive chemotherapy. Barely making it up the three flights of stairs, completely out of breath, we arrived on the 7th floor of the Oncology Day Ward - The Chemo Lounge. My head was exploding with the most excruciating pain I'd ever felt, since 3:00 am and my tears began to flow, uncontrollably.  My nurse gingerly accessed the port in my chest. She drew the vials of blood. I told her that I wasn't sure I'd be able to get treatment today. She expressed support and encouragement and offered me pain meds for my terrible headache. I went to lie down and I felt a little bit broken. A volunteer came to offer me a Reflexology treatment which, was so soothing in my state of, falling-to-pieces.

A while later, we received the news that my white blood counts were lower than ever. My red blood counts joined the party too and my hemoglobin is now sinking. One of the oncologists noticed that I was writhing in pain while waiting in the corridor. She brought me a red pill, one used against migraines. We discussed options with my oncologist. Concerns. Possible treatments. Blood transfusion? Head CT? More Neupogen shots. It was a very long day.

I received a phone call from my friend, P. She told me about a woman, a friend, who reads my blog. Her name is, Miriam, and she felt inspired, by my writing, to write a song. Some of the words are sad and most of them are touching and uplifting. The song is called, Faith. Knowing that Miriam was inspired to write this song of faith has really touched my heart and soul.





Friday, June 20, 2014

Where Does Faith Come From?

Where does faith come from?
Are we born with it or can it be created, learned, acquired along life's journey?
Last week, at this time, news began to spread in the Holyland of Israel. Three teenaged boys were waiting for a ride from their school to home. Three boys, Eyal Yifrah, Gilad Shaar, and Naftali Frankel, were brutally abducted by Hamas terrorists. It's been an entire week for their 3 mothers and their 3 fathers, of waiting. Praying. A week of sleepless nights for their brothers and sisters. A week that the entire Nation has prayed, cried, and begged G-d Above for their safe return.
Gilad (16), Naftali (16), Eyal (19)
Please G-d bring Eyal Yifrah, Gilad Shaar, and Naftali Frankel home safely to their parents! It's been a whole week that thousands of IDF soldiers have spent searching from house to house, arresting known Hamas terrorists, seeking to rescue 3 children, teenaged boys who, the week before last, were rough-housing with their friends, playing basketball and soccer, singing and playing the guitar.... being boys.

This week, the Nation watched their 3 mothers, as they made their first public appearance and their first public statements to the press. This is what we saw: 

The 3 mothers embrace
Strength. Composure. Love. Faith. Three mothers faced the cameras and spoke words of complete faith.  One of the kidnapped boys, is 16 year old, Naftali Frankel. His mother, Racheli Frankel,  spent most of her opportunity speaking to the press expressing thanks to the IDF soldiers and the hundreds of thousands of people, in Israel and around the world, who continue to pray day and night for the safe return of the 3 boys. Speaking with a clear smile and a strong voice,

  
“We want… to strengthen security forces, who are working day and night, the decision makers, and the prime minister, who is in contact with us,” she said. “We pray that all the soldiers, and our children, will come home without injury. We send our thanks to all everyone participating in this extraordinary effort.....
“During these days, we feel deeply embraced by the entire Jewish nation, which accompanies us throughout the day, which gives us so much support. We ask that the prayers continue… That’s it, all we want is to hug our children. Eyal, Gilad, Naftali, we love you, we miss you, be strong, be strong!”

The public feels a degree of complete helplessness. So many of us want to do something - ANYTHING - to assist in bringing back these 3 precious sons!!! The hashtags are out in full force;  #BringBackOurBoys #EyalGiladNaftali  Social media is flooded with minute to minute updates. News slowly leaks through, some of it true and so much of it, false. Neighbors and friends, strangers and Just People are showering the families of Our Three Boys with love and messages of support. Communities of Israel are out, in full force, showing our IDF soldiers our support and appreciation with supplies, food, and treats. People want to help. People NEED to act.

There is anger, worry, sadness, and some rage, and the overwhelming feelings and acts that I've witnessed and felt over and over again are love, faith and prayer. People of all backgrounds, all colors, all places in society standing together. We all share this immense, distinct love for these 3 kidnapped boys. We share hope and faith that they are alive and that our soldiers will find them and bring them home safely. We are praying.

Where does faith come from?
I know that I was born with some of it. I have never doubted G-d's existence however my faith in Him has grown. I cannot compare the pain of these three families with the pain of a cancer journey. It's not comparable. My Cancer Journey is merely an example of horror and tragedy strengthening my faith. I connect with Racheli Frankel and all 3 mothers, of Eyal, Gilad, and Naftali, and their ability to stand up, smiling, thanking the Nation for their prayers and kindness. They are sharing their monumental faith with us. Where does it come from? From their love for their sons? From love of G-d? I can only interpret what I see. I see 3 wives; 3 mothers who have put their existence and their beloved baby boys' fate in G-d's hands. These 3 women seem to be existing on complete faith, that no matter what happens, G-d is good. With enormous and unbreakable love and faith they are still able to smile and thank and have hope. That's faith. Where does it come from?

PLEASE continue to pray for the successful rescue and safe return of Our Boys, Eyal ben Iris Teshurah, Gilad Michael ben Bat Galim, and Yaakov Naftali ben Rachel Devorah.




Friday, June 6, 2014

Two Weeks On, One Week Off

Two weeks on, one week off. That's how my chemotherapy schedule is supposed to work.
My family 2010

Week 1: Carboplatin and Gemzar
Week 2: Gemzar
Week 3: NO chemo

Carbo, as we call it, is the mean and nasty one. That's the one that keeps me in bed or in the toilet for a full week. Gemzar seems to be a bit more friendly but still, it's chemo, it's not easy.

Carbo, is the one keeping me alive. It's the drug that's killing the cancer in the most miraculous way! It's the drug that I'll keep on taking for as long as it can do its job. That's a big deal because no one was sure that the cancer was platinum-sensitive and no one could have predicted that the tumors wrapped around and deep inside my vital organs were going to respond. It's a miracle.

Summer vacation is coming! The kids will be home from school, full time, before we know it. Some of our kids will go to day camps, some of them will be home for 2 months. I will be the full time entertainment provider. I will also be in chemotherapy, 2 weeks on, one week off.

My mom & 4 of us in 1988
I've always looked forward to summer vacation. As a child, it was filled with good times, good memories. We stayed home a lot and enjoyed just being a family, reading, drawing, doing art projects, swimming, cooking, baking. Sometimes I went to summer camp. The one constant was, I always knew that my mom was there for me. Whatever time of day or night, when I came through the front door of our home, I knew that my mom was there to hug me and love me. Mom would always make breakfast, lunch, and dinner. We had tadpoles in a big fishbowl and bugs in the bug-catcher. Mom was there to watch us swim in the pool or paint with watercolors. We could play in the mud and plant vegetables in the garden. Mom was there to drive us to Nojoqui Falls for a hike and a picnic, or to Santa Barbara, for a day at the beach. We always had the best sandwiches, cut up veggies, and of course a big juicy watermelon! Even the summer that my twin brothers were born - mere weeks later, we were off to the beach and hiking the trails! Mom did it. Dad was often at work, as dads tend to be. Mom never let us down. We always had fun. We were never hungry, we were never bored.

I used to be the one who took my kids to the beach without a second thought. I was the mom with the year round pass to the zoo and the Safari Park. I was the mom with the home made play dough and the caterpillars and the bubbles. I grew up with the perfect example of the Mom everyone wanted to have. It's hard to be the Mom With Cancer but what can you do? I still need to be the Mom. I want to be the Mom. I know that I'm being given the best chance that a Mom With Cancer could have. It's still very hard sometimes. Sometimes it's just hard. I feel guilty and I just want to lash out at the world. I want to be That Mom again. I want to be at the beach with my kids and make a lifetime of memories.

Two weeks on, one week off. Thank You, G-d for another week, another day. I will hug my babies, even when I'm weak and nauseated, and tired. Two weeks on, one week off, if I'm here, on this Earth, I hope it's enough. I hope my kids will forgive me; I love them more than anything.
Two weeks on, one week off.